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Archive for the ‘health’


Government funded database censors the word “abortion”

A librarian wrote to the POPLINE database providers to ask why a search strategy, probably involving the word abortion, retrieved fewer results than it did 3 months earlier. The response was:

Yes we did make a change in POPLINE. We recently made all abortion terms stop words. As a federally funded project, we decided this was best for now.

You can contact POPLINE here. You could ask that they make an announcement of this change on their website and provide a clear explanation as to why this term was eliminated.

POPLINE, is a database on reproductive health, population, family planning, and related health issues. It’s maintained by Johns Hopkins Bloomberg School of Public Health/Center for Communication Programs and funded by the United States Agency for International Development (USAID).

UPDATE: Women’s Health News has a great post on the topic, identifying work-arounds for the problem (for example, browsing the subject index instead of doing a search will retrieve articles on abortion).

Petition to help save CHN

As PC blogged about last month, the Canadian Health Network (CHN) is going to be shut down. An advocacy group (Friends of the CHN) has been created and they are asking people to sign their petition. They want 5000 signatures before sending it to the Prime Minister and the Minister of Health on February 14th.

- DD

Protecting health information - Canada’s Health Network

Greyson over at Social Justice Librarian has blogged about the impending shut down of the CHN. For discussion on why this is a bad, bad idea check out the posts here and here.

The Globe and Mail is on this story as well, and this info was posted in the comments section:

Catherine Bryant from Toronto, Canada writes: Speak out against the closure - join Friends of CHN

Friends of CHN is an ad hoc group whose objective is to focus attention on the closure and its impact, and to try to turn this decision around.

Here’s what you can right now:

1. Join Friends of CHN – send an e-mail to friendsofchn@click4hp.ca. We will occasionally send out updates to everyone who has joined the group to let you know what progress we’ve made and how you can help.

2. Voice your opposition by writing to the Federal Government – for messages and addresses in English see: http://www.blogs.opc.on.ca/?p=204

3. Join the Facebook group (English only so far) to share your support and ideas: http://www.facebook.com/group.php?gid=6400982981

4. Sign the petition: http://www.thepetitionsite.com/1/saveCHN

5. Tell your friends and colleagues about Friends of CHN

6. Volunteer your talent – let us know what you can do (write letters, talk to the media, connect with government officials, create a website, take notes on a teleconference, etc.) by writing to us at friendsofchn@click4hp.ca or join the Facebook group http://www.facebook.com/group.php?gid=6400982981 or both.

-PC-

Canadian hospital data now free for your perusal

The Toronto Star finishes up their story on medical secrecy with this wrap up article.

new for your blog roll, and technical difficulties

Social Justice Librarian is newish and We read banned books, and other stuff too a not as newish member of the Canadian library blog scene. these blogs are great their richness in content and snappy delivery. (I’m especially excited to see the intelligent, critical discussion about the links between policy and health information on Social Justice Librarian.)

as for the LA technical difficulties. these blogs would already be on the LA blog roll (and the library buttons on the top right which are way past-their-due-date would also be gonzo) but our need for a platform update has still not been met with the equal amount of free time and attention that it needs.

-PC-

Stop direct-to-consumer drug ads in Canada

Oy, librarians! No doubt you’ve already heard. But in case you haven’t, the push for direct-to-consumer advertising in Canada is marching on. However, if you like acronyms, it’s DTCA.

CanWest Global Communications Corporation stands to increase its profits should a lawsuit they are waging in the name of ‘freedom of expression’ succeed. While the public health system is strained under the weight of increasing costs that are largely the result of pharmaceutical expenses, CanWest seems to be thinking to themselves … why should Pfizer get all the cash? How can we get a piece of this action?

I say “they” because a corporation such as CanWest Global is not an individual. It is a group of individuals. If you’ve seen The Corporation, you will know the importance of this distinction. Despite this, under the law corporations are viewed as having the same rights as individuals. This lawsuit is claiming that CanWest Global’s right to freedom of expression is being violated. Does a corporation have this ‘right’? Meaning, do they have the ‘right’ to ‘freely express’ an advertisement on behalf of another multi-million dollor corporation, especially when they stand to profit from airing that ad? What about a corporation’s moral responsibility to society? Or the responsibility of the people who run that corporation?

Still reading? Back to direct-to-consumer advertising. The basic skinny is that it is legal in the US and New Zealand, Canada not so much. It gets muddy. Canadians have been exposed to drug ads through the American media, and in Canada ads for over the counter medications are permitted, as are ads that don’t recommend a drug for a specific condition. Americans and New Zealanders are exposed to the “feeling X? ask your doctor and buy Y” kind of marketing. According to the Toronto Star, US spending increased 10x over the course of 11 years, from 1994 -2005. Open Medicine, the British Medical Journal, Toronto Star, a recent CBC podcast, the Canadian Pharmacists Association and the CMAJ all have good information describing how direct-to-consumer advertising impacts health spending. No one seems to be a fan.

Direct-to-consumer advertising is not ‘free speech’. Advertising messages are carefully constructed bids to pitch products. They are created by talented, creative and well-compensated advertising teams. Legalizing direct-to-consumer advertising would permit profit-seeking corporations to compete with public health interests and public (as in your tax) dollars. As librarians, we can inform/remind the public that for safe and effective medical and health information, ads are not credible sources given that they are rife with branding strategies and backed by well-funded market research. Even if some ads are deemed ‘legal’ and hit the airwaves, they are in fact not ‘health information’. Unfortunately, the research suggests their impact is still huge.

Your Media notes that it is not safe to assume that it will be easy to prove that CanWest Global does not have a case. So you may be thinking, what can a librarian do in a situation such as this. Let’s consider some options …

First, whether you are a health librarian, academic librarian, public librarian, or special librarian - make your patrons aware of this issue:
a) CanWest Global is attempting to encroach on the public’s rights and they/we have a right to be informed about it
b) from an media/information literacy standpoint, DTCA exemplifies what NOT to use for informative purposes.
c) Tell your patrons about this film: Big Bucks, Big Pharma
(’c’ added June 10.07)

While I’m all for seeking alternative sources to health information, DTCA stinks. Freedom of expression being the wonderful thing that it is, you can exercise yours by talking to your Member of Parliament, sending a dirty note to the CRTC, and ccing whatever you do to the CanWest Global turkeys.

Oy, that was long. Thanks for hanging in there.
-PC-

Open Medicine journal and access to health information

Open Medicine’s first issue of peer reviewed medical literature is available online. Dean Giustini of UBC Library and the Google Scholar Blog has been a key player in bringing this new publication to life, and writes about it on both his blog, and now the Open Medicine blog as well. The journal was created in response to an editorial fiasco at the Canadian Medical Association Journal, with the intention of removing pharmaceutical industry influence over the production and dissemination of medical information.

Open Medicine is such a great title. It speaks to the need for not just open access to information, but also an open dialogue on how medical information is conceived, constructed, communicated, digested and negotiated. And while the open nature of the Internet provides an opportunity to level the playing field for patients, it is merely the first step to patient empowerment (not that anyone at OM has made an argument for technological utopianism). Pearl Jacobson notes in Partnership: the Canadian Journal of Library and Information Practice and Research, power dynamics between patients and physicians are a key aspect to whether access to information will translate into actual patient empowerment on the ground.

Any open dialogue in the health library field that discusses what it means to ‘open medicine’ would best include a look at the term ‘consumer’. Does a term with free market connotations belong in the discourse of a public system? ‘Consumer’ suggests that patients have free will and ultimate control within the physician-patient encounter, which according to Jacobson’s review is often not the case for a myriad of reasons. Recently on the PLG listserv, there was some excellent discussion and commentary on how language that expresses capitalist values and norms are not transferable to the field of librarianship. The term ‘customer’ was used on the CHLA listserv recently, and while I’m not familiar with the context from which it originated, it made me uneasy. Is there room for open dialogue on this subject in health libraries? What are the implications of a discourse that involves ‘consumerizing’ health information?

You can support the volunteer-supported Open Medicine by making a donation.

June 8 | 2007
Excellent article discussing Open Medicine, and the issues in medical publishing in general.
via Becky at the Clinical Evidence, Searching Tidbits and other Minutiae Blog

-PC-

Medical secrecy on its way out.

The Toronto Star’s latest piece in its series on medical secrecy today brought with it some good news for Ontarians.

The word is … no more secrets, no more lies. The stage has been set for Ontario to be the leaders in medical transparency in Canada.

Not only will mortality and morbidity records of hospitals be made public, but the health professions colleges will be required to make public findings against nurses, occupational therapists, dentists, acupuncturists, and physicians and the like. That’s findings, not complaints. Due process is still at work here. To boot, the records of physicians will not be wiped clean after six years, as they were previously.

The latest high profile case of cronyism and cover ups within the medical establishment led to wrongful convictions against innocent people due to the incompetent practice of Ontario pathologist Dr. Charles Smith. The CBC reported that ten years ago, Ontario’s Chief Coroner Dr. James Young attempted to block complaints against him. Evidence that eventually led to the release of one of Smith’s victims was found on his desk.

Here are the people who want to help you stay safe in the hospital and the medical establishment at large:
Ontario Hospital Association
Ontario Medical Association
College of Physicians and Surgeons of Ontario
(and the colleges of nurses, dentists, acupuncturists, PTs, OTs, social workers, etc.)

Please drop them a line to say ‘well done!’ or ‘you’ll be hearing from us!’ or rather, ‘it’s about time.’

-PC

May 7.07 - The Ombudsman of Ontario pressures government for oversight over hospitals here.